Monday, May 2, 2011
Avery's speaks
Never the less, here I am. A mess. I talk too much, and too loud, and laugh too often and in the wrong places. I'm a nerd and passionate about things in and around my life. I think quite often I can relate to most things...I probably can't.
I'm nothing special then a energetic whirlwind. A mess of pieces of a little bit of everything. I wouldn't be a beautiful romantic stain glass mosaic depicting some uplifting moment in religious history or a beautiful bird or flower, I'd be some colorful jumble and collection of glass and polished stones mortared together in some exotic pattern.
I reckon I should have more grace and poise then I do. My mother sent me to etiquette classes and both my parents were very guarded in speech and picked their words, presence and clothes very particularly. For some reason, I didn't learn to keep my experiences to myself, check my speech or water myself down. I live my life outwardly, knowing my experiences as lonely and pointless if not to bring or progress humanities position further towards a better world.
I know I possibly disappoint those whom I speak to online or through text or via messaging all the time. I don't get to organize my thoughts the way I do when I write, subtract some of the florally metaphoric crap and leave something raw but slightly polished for those to respond to. I just am.
I don't really know how else to be. I met the love of my life this way, my excuse is God made me this way and He loves me...so why change? He also has allowed me 2 beautiful children....I guess I'm made of the right stuff....?
I look though at my kids, and think, how did I get to be part of this life? My son's life continues to amaze me, wear me out, but truly amaze me.
I'm sure everyone thinks I get up with pep in my step, a smile and a Santa like to-do list and a mug of Dunkin coffee and some sort of plan to my day. O, and my makeup is done and my outfit is coordinated.
In all honest, waking up in the morning is no fun. I think I purposely stay up late so I can put off the bittersweet of the alarm. I stumble often into things I know are there, set off half a dozen baby toys and buzzers on my way to the shower and don't really have much to say until around 2 hours after I've gotten up.
Around 1pm I'm struggling for reasons to stay focused on anything...often I'm overwhelmed because my phone has rung probably 25 times and my inbox has 22 messages...my OCD is not happy with life at all. If I get on a roll I feel rather accomplished and get amped up. If for some reason I'm off that day....I look at the little inbox warning and sigh "What did I get myself into?" crosses my mind.
Yup, pretty human. Sometimes remembering the hardest times in Avery's life is hard for me. I know...surprise? And I'm not amazing, and I know it...I'm a "I'm happy I got blush on my face" type girl and having a full time job, a baby, a foundation and school gets overwhelming.
There's a reason we have 3 different 'project managers' and assistants....I would be lost, the Avery's Angels email monster would eat me up.
And Avery hasn't gotten any better. He won't, he's my son and I should have a 2 year old bounding all over my house and wanting to wrestle with his sister and not wanting her to drool on his toys...I should have 2 baths to get done and blue mixed in with the pink laundry.
So I need a pep talk quite often. The daily messages about "I'm so happy I found you all" are nice and a good reminder to "keep on" but every now and then people find/do things that are truly amazing for me.
Like people who want to do fundraisers around the world, work with/for me, send gifts, small or large, hand written notes, speak on us, send me stories about butterflies they've seen or how Avery came to wake them up or motivated them to various things....or name their babies after my son.
That he has become to everyone else what he meant to me....something to be proud of, something to aspire to...yes aspire to as his mother...I want to be more like my son. I want to be wide eyed to the world, trusting and believing in all, and ready to laugh at the little things like my mobile. I want to be able to know that crying isn't going to make it easier, that it hurts but it will eventually get better. That love is worth having no matter how short or long. And a smile is the most amazing gift you give yourself and others as often as you're able.
And he is that to others. So much so that people want to name their children after him....that people reach out from corners of the world, email us inquiries and think I'm some dame that I'm not.....
My son has put rose glasses on others...I'm slowly changing into a much more graceful mother because of him...and he's inspiring others to have their best lives.
And he speaks, he tells me everyday at 2pm to put my head down and get through. "Mama, crying isn't going to do anything, just get it done." A song pops on the radio, a rainbow catches some random object and flashes up, a butterfly spends a few hours flitting in and out of a corner of the yard or window. "Hey Mom, remember when I got my 3rd PCC line in and you freaked out and I was like 'what's your deal mom?'"
So I put my head down and muscle through, and look up intime to see a butterfly pass me by, and hear someone tell me, "Avery came today...." And Avery says "hey Mom...remember when you freaked out then and I told you "eh, no biggy..."
Not much has changed, son. Except you're changing everything.
Wednesday, December 15, 2010
Amazing Grace
Saturday, November 20, 2010
Sometimes I just look at my pieces....
Tuesday, September 14, 2010
Missing Avery...waiting on Sissy
It won't stop at every annual event, every Christmas, when his friends would be going to Kindergarten, going to prom, graduating....all of it. I'll always wonder.
Some people like to try and give your heart ideas to hope for, positive thoughts to some how cut the miss...the sediment is sweet, but the words and ideas are no where near enough to do what necessary. It's like putting a bandaide on a broken arm, it's sweet but not going to help much. But he wasn't an awful memory, was beautiful, he was precious, the best time of life. Which makes it all the more hard to let go. He's not a painful memory...I just miss him so.
People say "O he's your angel" "he's with you everywhere" "he's happy" "he's whole" O boy do I know...it doesn't help much to repeat all of it...because he feels all those things feel so far away from me here. It just is the way I feel. No words are going to change that.
God aches for us in the same way, our Spirits long for Him in the same way, only more. Those who have babies and children in heaven know just how amazing Heaven is and how beautiful it will be to get back there. And it hurts to be here stuck knowing just how amazing it will be.
So it's a miss...it's not a pain...people think it's a pain...it's not a pain....it's the natural ache to "go home" and be whole...only a lot more intense. Who can be sad to have such a beautiful baby, to be loved so intensely, to be needed so wholly.
That being said...things are getting really tricky, waiting on Avery's sissy.
No baby has been hoped for more I believe. We're so excited to meet her so excited to see her and touch her. There are plenty plans and discussions....
I get so excited and happy when she rolls around and kicks. I get excited when my ticker clicks off closer and closer to the due date....and the months get smaller and smaller.
But a lot is bittersweet...like re-doing the nursery. I'm excited and happy...but I'm also sad and reminiscent. I remember how tickled Jared was when he got the paint and put up the border and how we picked out little things here and there to get the room situated. All the clothes and toys and gadgets...so many of them unwrapped...
She can't replace Avery and we don't expect her to at all. She's going to be a new gem in our family. A new tale, a new adventure. She'll give us a new meaning to life, a new chance and a new breath of life. She'll give us many laughs and many tears, she'll probably have us holding our breaths a few times and glad we are breathing to watch her many others.
I hope she knows how much she's loved, and I also hope she knows all about her older brother and how special and wonderful he is. I hope she knows how much we dreamed of her and want her and how excited we are to have her. I fall in love with her more and more everyday, if that's even possible. December/Jan feels so far away. I'm ready today.
But then...I've been ready for a while now.
Tuesday, July 6, 2010
First Annual Angel Day. GET INVOLVED!
On July 30th, 2009, Avery John Rauen left to be with the angels in the UNC Butterfly garden from his parents, Jared and Meghan's arms. His beloved family and amazing medical team looked on. He had fought heroically for 107 days against gastroschisis and his life has provided much unity, support and hope for a disease affecting many babies and many families all over the world.
We plan on honoring Avery and other gastroschsis survivors and victims every year on July 30th to raise awareness for the birth defect now affecting every 1 out of 2500 births in the US.
The event is to promote support and raise awareness of the members of your local community affected and how simple little gifts can mean so much.
There are events planned (location TBA) for the RDU area. They are listed below along with suggestions for events to promote, sponsor and put on in your area.
- Blood/Platelet/Plasma drive at area hospitals with NICU's (contact Meghan for NC area hospitals)
1 adult donation of plasma or blood saves 12 babies and gastroschisis babies require much during their surgeries.
- Please support the Ronald McDonald House by purchasing a Happy Meal or bringing your change in to a location or our planned potluck/picnic on the 30th.
The Ronald McDonald house provides access for parents to their children while they struggle through difficult diseases. However, they need your support! The houses tend to fill up quickly, while babies come in and have families who struggle to be by their side.
- On July 30th, Location TBA, at 5:30/6pm we will have a potluck/picnic.
Some food will be provided but please bring a dish to share.
- At 7pm we will do a butterfly release. (Suggested $2 donation to be part)
- At 8pm EST we're asking all families to light a candle or pause for a moment of silence to honor all survivors, victims, expecting parents and families enduring the journey.
You can also:
Promote and come up with a walk/marathon
Create a musical/family event
Promote your own blood/plasma drive at the hospital where your child was
Restaurant Promotional Event
If you would like to donate, get involved, volunteer your time or need help with suggestions please email us at meghanhall@averysangels.org
11,000 babies born today, 4.4 were born with gastroschisis. Let's do something about this. Let's take a moment to honor those families.
We hope you'll join us in our celebrations or have your own all over the world!
Love and blessings
Avery's Angels
Thursday, July 1, 2010
Long time
Several activities since last time.
I miscarried in Febuary and was absolutly devestated. It rocked my world and I would spiral and not be able to grasp onto anything around me to pull me out. With some counseling and some meds I pulled through but was feeling very broken and alone.
I also was confronted rather sharply by a religious community I was part of devotedly through Avery's days and it also rocked my world. Jared's dad eventually told me, even through his own disappointment at the situation that "Don't let people who hurt you to rent space in your head or heart."
It's so true. I preach on it all the time. It doesn't matter how many hugs or kicks you did or didn't get, it's about this moment right now and what you're going to do with it and how you're going to live the rest of your life. I'm so glad that God took that moment to use him for those words.
Like everything in my life it's given me more fuel, more of a message and more passion. I was never lucky enough to be born into a Christian community and have always felt the brunt and coldness of the self-riteous who unknowingly look down upon those who aren't saved and speak with such condination and so little experience from being out of that world. I struggle, like anyone else who comes from my "outsider" experience of not feeling "good enough." Churches feel clichey often, and a place full of cookie-cutter people. I hope one day to grow a church where people genuinly can walk through the front doors and be taken in love at their pace in their lives with no strings and no expectations. I hope one day I can be the place where if it takes 80 years or 2 weeks to go down the journey, that you feel comforted and loved every step. Where God isn't the only person calling out, and you don't slip through the cracks, but that there are people consistantly calling and watching out for you. Just like I hope Avery's Angels to be.
I'm happy to say I am officially 12 weeks pregnant and due in Jaunary. It feels so very surreal and like a dream. I'm frightened and freaked at every cramp and pain and twitch. Jared laughs at me and tells me I'm a nut but I guess, granting my experience that it's normal and Mid-Carolina OBGYN has been so accomdating.
Avery's Angels finally has a functioning website! www.averysangels.org and we're growing in leaps and bounds. We suffer from lack of funding and have so many different families in need. I wish that we could strike it rich and get it all done.
We will have a Pepsi Refresh Project to vote on in August and God willing it will finally answer all of our funding needs!! Keep an eye out for posts and updates on voting and links to do so! It will only happen by vigelent people doing all the button pushing they can!!
Patience.......I'm learning again.....
Monday, March 29, 2010
Parenting, Venting in a quazi logical way
Pouring out the heart
As a teacher I get to see the product of many different things that a child has come into. First, every baby is a product of itself, meaning, it has a father and a mother and may have such tendencies that relate to their character. But they also possess their own identities and abilities for self thought and creation. The parent’s objection is to love, nurture, educate and impart wisdom upon their children so they may better survive the world around them. A parent cannot expect to with hold life, experience and the autonomy from a child. They will become who they are regardless of the amount of parental pressure.
Kahlil Gibran says this about children:
Your children are not your children.
They are the sons and daughters of Life's longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.
You may give them your love but not your thoughts,
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow,
which you cannot visit, not even in your dreams.
You may strive to be like them,
but seek not to make them like you.
For life goes not backward nor tarries with yesterday.
You are the bows from which your children
as living arrows are sent forth.
The archer sees the mark upon the path of the infinite,
and He bends you with His might
that His arrows may go swift and far.
Let your bending in the archer's hand be for gladness;
For even as He loves the arrow that flies,
so He loves also the bow that is stable.
Truer words have never been spoken about the parent to child relationship. There is no prescription for happiness. What determines ones desires and values is based off their experience and their past, an others is completely different. There maybe similarities in values but the expectations and dreams will vary greatly from child to child, generation to generation.
I look in my own line of work and see children born with tenacity, they’re able to see over their circumstance and strive for what they can and dream of. I see others that are overwhelmed and deterred by their circumstance and need coaching and support to love themselves as they are. The truth is as Americans, we have lost value in the individual. We think that all persons should desire greatness and access to wealth and opportunity, when in reality, being and individual means that we each value different things in different ways.
As a teacher I don’t want my children to be anything but happy. The same as in my relationship. There’s nothing monetary or legalistically that hands you the keys to fulfillment, that can only be realized in your own sense of accomplishment, and everyone has a different understanding of what that is.
Some say accomplishment is doing great things of heroic nature, saving millions of lives and accruing great sums of money. Erecting large buildings and putting a legacy with their name. Others view accomplishment as being a good friend to someone who has never understood the humanity that truly exists in the world.
Parents suffer from this in to opposing ways . Some come from without, have suffered greatly from their struggles and seek at all costs to protect their child from that hardship. They dream of greatness and accomplishment for their children and push them under the guise of “you don’t know how good this is for you or how important it will be to your future.” I’m not talking about encouraging homework, I’m talking about placing value in the extra curricular and their focuses on Ivy League schools and incredible dreams of greatness and success. Then when the child veers off the past, the disappointment and anger from the parents berates the child and makes them feel their uselessness. You see, when we ingrain in our children the value of who they are as individuals is their level of accomplishment, their short comings appears to them as themselves being useless.
On the other hand we have another type of self=absorbed parent who feels that “it was good enough for me so it’s good enough for them.” Was it really? Was it the best for you? And here is a brand new life with the capacity and ability to do something better. Should we keep our lives and our society as “good enough?” Should we not encourage more and better?
Education is a gift, a precious one that no one can take away. It’s perfectly acceptable to build value in education because you’re building value in self worth and self esteem. A child’s ability to problem solve, know the world around him and understand better the world around him equips him with the ability to make self sustaining autonomous decisions. Building the ability to discern wisdom and folly is also a way to insure positive self success.
And here we enter moral values. Plain and simple there are several different moral values, not intentionally causing harm to another person or yourself , respecting others (which in turn builds understanding) being benevolent and kind, standing true to yourself and valuing the good are all important. However, as we educate and build our children with the capacity for independence, and not just the “I know how to do laundry” independence, but the capacity to discern what is right and wrong we should never once condemn their well established and founded believes in opposing theological positions. How can one love God if they haven’t truly made and understanding of Him. He is Sunday school songs and stories, but He is also alive and acting. You may perceive Him in all that you do while others perceive these things as “luck” or “life.” In other words, it is rare that any 2 people have a shared experience, and a parent’s job is to continue to love with in their values and lead by their drawing in and demonstrating how well their own life functions with the set of beliefs they value.
Gibran said :
Your children are not your children.
They are the sons and daughters of Life's longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.
You may give them your love but not your thoughts,
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow,
which you cannot visit, not even in your dreams.
For life goes not backward nor tarries with yesterday.
God has given your children life. He already gave you life, now these are their own. Their future is different and will be different from your own because change is always happening. We say that history repeats itself, but in very different ways and very very different capacities. The experiences you have had are in the past, and “life goes not backward nor tarries with yesterday.” There are lessons to be learned from past experiences, and ideas to make not of, but inflicting these values and warning as inevitable is “tarring with yesterday.”
Gibran illustrated the role of a parent beautifully, you are the strong bow, and God places the arrow and aim into the future. You are not the archer, God is, in His infinite wisdom and knowledge, he bends you back and takes aim. But as Gibran points out, the bow must bend graciously and with joy so that the arrow will fly far and aim for the target that God has intended as He is the archer.
Many parents forget this. Their child’s life is not their own, through conception and birth you labored them into this world, but it was God to gave them life, dreamed of them coming and created them. He gives them their heart and plans out their road before they are even thought of by you. And although they may suffer and make meandering trips towards directions that you would not wish for them, they do not belong to you and their life is not yours to dictate. Your place is to love them and protect them as to your ability and not dream for them.
Be a flexible bow and trust the great archer. Although they are your children they do not belong to you, their souls are not for you to maintain. You impart the wisdom, love and education that you can, you support them unconditionally as Christ washed the feet of those who would hang him on the cross, but you cannot direct the aim of their life. There is only one person who caused that movement and allowed it to come to be. Beseech the archer, love the arrow and surrender to your shortcomings. You are a parent, to help love, lead and gently persuade. Not to dictate and self determine. No matter the fact that the arrow and bow may have been cut from the same tree, their function, their grain and their density is much different.
All parents, love on your children, encourage their wild dreams and their not so materialistically bound endeavours. The truest bliss and happiness to God is when those whom he has set forth act in a full heart with great joy their truest talent and are really thankful for their abilities. Not when they are just happy they covered their bills and their lights are still on.
Here’s another warning:
Be quick to think before you take and emotionally charge opinion on anything. Breath and rationalize your truths and think about the answers to the dissension
Just a philosophy trick. Arguments are much more effective and well “fought” when not based in emotion. Emotion has the capacity to cloud judgement