What we need help with now is several areas:
People who will be interested in starting the outreach/support/awareness groups in each state once we get the NPO filed for in NC it will be much easier for us to do this. (Our plans are to start after NC in CA)
People who can volunteer time for support.
People who have connections to medical facilities by state with gastroschisis experience. (The gastroschisis.org site will have a comprehensive map of hospitals and doctors offices with experience in these cases. We need to be making those connections now also for support.)
Any information on places and doctors doing research into causes. Lots are doing research into repair.
State listing for Family Support Networks and connections to (the one in NC will be training all of our parent-to-parent support volunteers. I'd like to have this same personal training offered in some shape or form per state.)
All of your gastroschisis stories, information, pictures.
Fundraising ideas. Funds.
Questions, comments and concerns.
Please email me or post on the forum http://forums.averysangels.org or email me directly at meghanhall@averysangels.org or info@averysangels.org
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