Please submit your list of medical content you would like to have avaliable. The UNC hospitals are compiling what we list.
Obviously, (or not) a gastroschisis baby does not have a pre-determined or set course of care. So all possible angles and procedures can not be listed in sequential order. But care paths, surgeries, infections, procedures and so on can.
They also suggested compiling medically specific and concise carepath stories from parents. Our Avery's Angels will list the emotional and story section of care paths and stories, these stories are to just show the different care paths that babies can have.
Another very amazing and wonderful suggestion is that parents take pictures of their gastroschisis baby/child's belly buttons. This gives a very precious picture of how variant care paths can be and what to expect.
Email your suggestions, care stories and pictures to me at meghanhall@averysangels.org
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